My family didn’t care when I almost died and I don’t know how to deal with it

I almost died in hospital, my oxygen levels would drop quite low, wheezing, low blood pressure and daily anaphlaxis (I now know due to be a rare immune disorder). I was on oxygen, constant nebulisers, IV magnesium, IV steroids, adrenaline with little improvement and could have died. I was loosing weight & on a drip too barely able to drink or eat.

My family did text me to see how I was doing, but also said things like “anyone could die” when my mum said I could die. My Nan said “this is ridiculous, you didn’t need all those ambulances could have driven there” (I must of had 20 within 6 months). And “Im not that unwell and the only reason I stayed in hospital for 3 months in an nhs is because we asked to.”

In the family group chat, we would send doctors letters as evidence, and they would say “hope she feels better” and that was that… no “we’re coming down now”. Ignored, slow replies, or I was dismissed by some.. But when the family dog died…. Oh That got MASSIVE attention and sympathy!

t’s been utterly terrifying having a life threatening rare condition the doctors didn’t know how to treat, and to go through it without love I thought I’d receive (aside from my mum)