My daughter has been diagnosed with Prader Will Syndrome and I’m spiraling

As the title says my daughter has been diagnosed with PWS and I don’t see it I guess maybe because I’m her mom but I don’t. I have been researching about the illness and symptoms of it and I feel helpless and hopeless, not to mention the postpartum hormones and her being in the NICU so long is making me feel lower than I ever have felt not helping my optimism. She cues and eating from her bottles she just can’t stay awake long enough to finish. Her doctor plans to have another genetic test done I don’t know why but I’m worried it’ll just confirm the diagnosis I don’t know how to cope and i’m genuinely afraid I may not make it before my baby girl get home from the NICU. Just a little extra info about me: I’m happily married,24 years old, baby is premature born at 4lbs 0oz, and first time mom. I apologize about my poor writing I hope those who read this understand I’m kinda spiraling quietly so I was just typing away. Here’s my little nugget🥹