can anyone relate? could this be something else?

Hi all,

I just found this group and wanted to share my experience to find out whether anyone thinks I have anything other than vasovagal syncope going on. Growing up, I've always had this problem. I'm 30 now, but I was often sent home from school as early as first grade due to feeling dizzy and lightheaded. My parents would take me to the hospital and doctors would say I just needed to rest and lay down, but no one suggested this as an issue to be looked into further. I got pretty used to making sure I didn't get up too fast ever, and was even pretty athletic for most of my teens. The first time I actually fainted was in high school, and it was from getting up too fast and walking up stairs. This all continued into university, and the whole sudden tunnel vision/body weakness started to rule my life, and I stopped playing sports and lost a lot of friends because the frequency of this all made me seem like a "flake" on plans to pretty much everyone (I don't think anyone believed me/or thought I dramatized it). In graduate school this happened to me while working internationally, and exposed me to kind of a scary incident and I developed a panic disorder after that. I've always pushed through, tried not to make a big deal about it to employers (even if sometimes I had to get myself home after walking up/down stairs too much). While going in for testing for Ménière's disease (I was desperate for a diagnosis),doctors found thyroid cancer, and I thought I found the culprit. But even after surgery and recovery, my symptoms started again. I can't make a bowel movement, sit in an airplane without needing to lie down, do breathing exercises and convince myself my body isn't about to faint/shut down (I'm really anxious about it). If I exercise too hard (as much as I want to/know I should have the stamina for), I pass out or GET CLOSE, and feel like I'm going to die for HOURS (which I feel is worse). My issue is that I'm not fainting. I get tunnel vision, I lose feeling in my arm or my knees feel weak and I feel like my body is literally draining. I'm literally married to a doctor and he just keeps saying "it's syncope, drink more water. lay down.". I do remember that when I raised this with my cancer surgeon, he did say "I don't know, it sounds like an autoimmune issue but I can't help you there". I've since been diagnosed with depression and panic disorder, severe anxiety, ADHD for brain fog/focus and I've been on all the meds (and still am). Still, I just can't accept that this is just my body being dehydrated or whatever triggers vasovagal syncope. Do you relate to anything I'm saying? Can you flag anything I said that you DON'T relate to as maybe a clue to something else. I just can't stress enough how much of my life, excitement and how many experiences I've lost due to this. Even as I write this now, I have been struggling with weakness and nausea since a brief moment of dizziness yesterday afternoon.

Any guidance would be appreciated.